Here is a wonderful new blog I found. She is an MD that writes from the patients POV, patient stories. This was the best lesson/advice I ever learned in med school. LISTEN to your patient...They will 'tell' you what they have.
And there is, and never will be, any published 'guideline' that can teach this or can measure it! or grade it!
If you or your family have conditions she has written about you may be helped. Just knowing someone is listening helps.
Listening to Patients: Voices from the Underground